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In just four years, a Perth mother lost three babies before she was eight weeks old.
When Kym’s son Lucan was in born toThere is no explanation for why he lost his life.
Her pregnancy went smoothly without complications, and he was full term, two weeks later than the expected date of delivery.
The 41-year-old and her husband Lucan, who was living in New Zealand at the time, decided to continue trying to have another child. After 20 months, they welcomed their son Ryan, who was born on October 5, 2005.
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Baby boy will arrive in three weeks Too early -But very healthy in other ways-yes Triumphant his parents.
“I really like the simple things of being a mother-bathing time, staying at home and staying in that space,” Kym said Children’s playground.
“I remember that he is so precious and small, and I want to protect him from being hurt.”
Lunca was born motionless, source: provided to Kidspot
“I lost two boys less than 8 weeks old in just 20 months”
Their bubble of happiness burst in the most devastating way, when Ryan, who was only eight weeks old at the time, swallowed his last breath before his mother’s eyes.
“He was crying in the cradle by the bed, as if in pain, then suddenly he lowered his head and he left,” Kym recalled heartbreakingly.
“I was shocked and unbelievable.”
Little Ryan’s heart has failed. The doctor quickly found through an autopsy and swabs taken from the baby Lucan that both brothers had died of the same disease: endocardial fibroelastic degeneration (EFE), a rare heart disease that affects babies and children.
There are many reasons for EFE. In the case of Kym’s child, this is due to a recessive gene that cannot be detected during pregnancy.
“When they told me what it was and how rare it was, I was relieved because it gave me an answer,” Kym admitted.
“But they couldn’t find the gene that caused it-it’s like finding a needle in a haystack.”
Kym is also the mother of her now 21-year-old son Raeks, and she is still determined to expand her family.
Although doctors told parents who now live in Perth that they have a 75% chance of having a healthy child, they decided to register as an egg donor to greatly reduce the chance of having another child with EFE.
related: The mother who lost two babies received terrible news
Ryan passed away at 8 weeks old-only 20 months after his brother Lucan was born. Source: Provided to Kidspot
“I lost my third child in just 4 years with the same disease”
However, in some strange turning point of fate, in the same month Kym received the letter to find the donor, she was surprised to find that she and Lucan, who was using contraception, were expecting another child.
“I am very excited, hopeful, and believe that I have a girl,” she recalled vividly.
“I was also a little scared because you didn’t know until you knew. When Ryan passed away, the doctor told us that they didn’t know if it only affected boys. If I didn’t know if I could have a healthy girl, it would be impossible for me Towards the grave.”
Just as she gave birth to her first two children, Kym got pregnant smoothly-her daughter Jade was born on July 28, 2009, very healthy and full-term.
But this bizarre turning point soon became a very cruel fate, because the little girl could only live for two days.
“Her body immediately stopped working,” Kym said sadly.
Pathological tests revealed that Jade also died of EFE.
related: Mother who lost four babies begs for help to save girl
Jade gave birth to her only daughter, Jade, who died two days later. Source: Provided to Kidspot
“After losing three children, I fell into a deep depression for 12 years”
Kym and Lucan lost three babies to this extremely rare and deadly disease in these painful four years.
“I think my whole life is over,” the mother of four said with emotion.
“It’s hard to leave home. It’s hard to face people again. I thought,’Why does this happen to me? What have I done to be worth this?
“I feel very isolated because I don’t know anyone who has experienced this situation. I have gone through the stages of anxiety and depression-but I can’t tell the situation at the time. I am very afraid of the future and I don’t know myself day by day. How do you feel, and don’t know how I will respond to the questions raised by people who know I’m pregnant.”
This broken mother-who has also experienced two miscarriages and three miscarriages-could not bear to use the donated eggs to get pregnant again.
“We think my body has had enough,” she admitted.
related: They lost two boys two years ago.Now they are blessed by twin sons
Just three weeks before his sudden death, the five-week-old Ryan was with his mother. Source: Provided to Kidspot
“After losing three children, I finally saw the light”
This devastated mother of four children spent 12 years in the dark, feeling “frustrated, confused, and dissatisfied” until she started asking and answering those that would change her life and enable her to overcome extreme sadness problem.
“I asked myself,’Why am I upset because they are gone?’ The answer is because I can’t catch them. Then I asked,’Why do I need them here? Love them. This leads to a question,” Why do I need them to love them? “Show them that I love them. Then deal breakers are the last question:’Why do I need my kids Yes Show them here that I love them? The answer is I don’t. If they stay away from me physically, I can still send love. Just because they are not by my side does not mean that I cannot love them. “
“I have to stop fighting with the idea that I should be their mother in some way. I am already a mother-it doesn’t matter if they are not with me.
“This is how I became who I am today. I have too much love to give.”
Kym’s recovery process is still going on and now as a Mentor Help others cope with challenges in life, including overcoming the grief of losing a child.
“I have special moments when I think of my children, but that is in a different space,” she said with a smile.
“Seeing my children for a while has made me fall in love with their memories. I cherish these and believe that I should go through these to help others through their journey. This is where I need to go in the future and live a fulfilling life. Part of your life.”
Kym (and her daughter Jade) lost three babies less than 8 weeks old in 4 years due to endocardial fibroelastic tissue hyperplasia. Source: Provided to Kidspot
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