Parent Project Muscular Dystrophy commemorates the 20th anniversary of the MD-CARE Act – QNT Press Release


Washington, December 18, 2021 /PRNewswire/ – Today Parent Project Muscular Dystrophy (PPMD), A non-profit organization leading this struggle Duchenne muscular dystrophy (Duchenne), Recalling the moment when the president 20 years ago George W. Bush Signed into law Muscular Dystrophy Community Assistance, Research and Education (MD-CARE) Act This helps to significantly improve the lives of people and families affected by Duchenne, Becker and other forms of muscular dystrophy.

Prior to the promulgation of the MD-CARE Act, the U.S. government’s commitment to Duchenne’s research and public health activities was almost non-existent, and few companies were investigating this area. The enactment of the MD-CARE Act into law — and its subsequent two updates in 2008 and 2014 — promoted policies that led to progress in public health, medical research, and treatment development.These laws have also sparked interest in the biopharmaceutical industry, leading to the approval of treatments for certain forms of Duchenne’s disease andMore than 30 other potential therapies currently in clinical development.

“Politicians and advocates often use exaggeration to exaggerate the impact of bills or laws. But for those of us in Dushing and the larger muscular dystrophy community, the promulgation of the MD-CARE Act does…

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