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Join the 5p- Society and help bring awareness to a Rare Genetic Syndrome. May 1-15, 2022: International Chromosome 5P Deletion Syndrome Awareness Week(s) May 5: 5P Deletion Syndrome Day
LAKEWOOD, Calif. , April 30, 2022 /PRNewswire-PRWeb/ — The 5p- Society of North Americaalong with families and support organizations from over 95 countries, are bringing awareness of 5p Deletion Syndrome also known as 5p Minus (5p-) Syndrome or Cri du Chat Syndrome. This genetic condition is caused by a permanent deletion on the “p” arm of the 5th chromosome. The 2022 awareness campaign celebrates these unique individuals by raising awareness around the world through education and community events, such as the “Faces of 5p-” campaign as well as a Virtual 5K for 5p- event, among others.
The 5p- Society’s mission is to maximize quality of life of individuals with 5p- and their families. One way to improve the lives of individuals with the syndrome is by creating more programs that bring families together. The 5p- Society encourages families to focus on what the individual with the syndrome CAN DO; SEE the PERSON, not the disability; and to PAY FORWARD and educate others on what they have learned about the syndrome and their loved one.
“What we have learned during these past few years about our children is that they are adaptable and resilient. They are also very strong willed and persistent. If they want something, they will figure out how to get it or how to do it.” Says Laura Castillo, Executive Director of the 5p- Society. “Learning how to use technology, be it a computer, tablet or assistive communication device, may take …
Full story available on Benzinga.com
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