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Beijing, December 16, 2021 /PRNewswire/–An interview with Sun Wanlu, a reporter from Chinanet China’s Medical insurance “bargaining”:
3-year-old children are called toddlers, and they should jump around and make trouble everywhere. But Pine Nut, a toddler with spinal muscular atrophy (SMA), can’t really “toddler”-to make matters worse, she sometimes has to rely on a ventilator to breathe. SMA is a rare genetic disease that only affects children between 0.1-0.17‰. But once the illness is dying, it will be a lifelong burden for the sick child and family members.To make matters worse, Spinraza (nusinersen), the first effective drug against this disease, cost almost 700,000 yuan (about 100,000 USD) Each dose when first introduced.In other words, an SMA family will spend more than 2 million yuan (Exceed 310,000 USD) In children, it’s just for medicine. But a few days ago, some good…
The full story can be found on Benzinga.com
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